Overview

Summary

The purpose of this data integration project is to quantify individual- and family-level, socioeconomic impact of preterm birth, in both the short- and long-term survivors and compare their outcomes to those of infants born at term. This project will also create a retrospective cohort of families of preterm infants and compare their outcomes to those of families of infants born at term. Four cohorts were produced for this project: long-term follow-up of children (LTC) born between 1983 and 1996, long-term follow-up of mothers (LTM) of children born between 1983 and 1996; short-term follow-up of children (STC) born between 2006 and 2015; and short-term follow-up of mothers (STM) of children born between 2006 and 2015. Subsequently, each cohort was linked to one or more of the following administrative and/or survey data: the T1 Family file (T1FF); the Canadian Vital Statistics – Deaths Database (CVSD); the Discharge Abstract Database (DAD); the Employment Insurance Status Vector (EISV); the Postsecondary Student Information System (PSIS); and the 2006 Census of Population. This project will provide valuable information to both policymakers and clinicians. The linked data can be used to help inter alia: Elucidate areas of focus or improvement for future interventions involving preterm birth children and families; and Provide comprehensive, quantifiable estimates of the short- and long-term socioeconomic impact of preterm birth on both child and family

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