Overview

Abstract (English)

Background: Designing an effective survey for gathering primary health data using a community-based participatory research (CBPR) approach in Indigenous communities in Canada has its challenges. Yet, the Pictou Landing First Nation (PFLN) Native Women’s Group (NWG) and academic research partners achieved a 59% response rate. Objectives: To share lessons learned with both campus and community-based research teams engaged in CBPR involving Indigenous communities on the process of team development, and particularly survey development and execution, as well as the factors that led to a reliable and valid household level environmental health survey that achieved a 59% response rate. Methods: Multiple debriefings conducted over the course of the 12-month data collection period allowed us to modify our protocol to fit with community oscillations. Results/Lessons Learned: Unique aspects of CBPR allowed for the development of a culturally appropriate survey protocol and culturally relevant variables that reflected the concerns of the NWG, and presenting preliminary data to the community also encouraged community buy-in to participate. Conclusions: Sharing lessons learned in this project are intended to have positive implications for future CBPR projects wanting to collect primary health survey data involving Indigenous communities.

Abstract (French)

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